understanding cerebral palsy a guide for parents and professionals jkp essentials

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Understanding Cerebral Palsy

Author : Marion Stanton
ISBN : 9780857002563
Genre : Education
File Size : 50. 26 MB
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An invaluable starting point for anyone encountering cerebral palsy for the first time, this book provides essential background information on causes, types and symptoms, as well as vital advice about the treatments, therapies and sources of support available. Practical tips on everyday considerations such as communication, diet and education will help parents achieve the best quality of life for their child. A final chapter explores options after compulsory education and how best to support a young person making the transition to independent adulthood. Using personal experience and case studies as sources of inspiration, as well as a comprehensive list of resources to signpost readers to further information, this positive handbook will help parents and professionals more fully understand cerebral palsy and the different options available to people with the condition.

Cerebral Palsy

Author : Freeman Miller
ISBN : 9781421422152
Genre : Family & Relationships
File Size : 60. 57 MB
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When their child has cerebral palsy, parents need answers. They seek up-to-date advice they can count on to make sure their child has the best possible health and well-being. For three editions now, a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children have shared vital information through this authoritative resource for parents, who will turn to it time and time again as their child grows. The new edition is thoroughly revised to incorporate the latest medical thinking, including advances in diagnosis, treatment, and terminology. Every chapter includes new content on topics ranging from genetics to pain, temperature control, palliative care, why growth suppression is sometimes recommended, the Affordable Care Act, and how to make it easier for siblings to cope. Chapter 8 has been entirely rewritten to better help adolescents prepare for the transition to adulthood. New classification systems, such as the gross motor function classification system and the Functional Mobility System, are described and explained. And a number of emerging therapies—including marijuana oil, cord blood transfusion, deep brain stimulation, epilepsy surgery, and growing spinal rods—are explored. Intended for parents, grandparents, teachers, therapists, and others who care for and about people with cerebral palsy and cerebral palsy−like conditions, this is an essential and compassionate guide. Key Features: • Detailed descriptions of specific patterns of involvement (hemiplegia, diplegia, quadriplegia)• Explanations of the medical and psychosocial implications of CP• Photographs and drawings that complement the text• Practical advice about caregiving, from nutrition to mobility • An illustrated encyclopedia that defines and describes terms, diagnoses, medical and surgical procedures, and orthopedic and other assistive devices• Lists of resources and recommended reading, which include a number of online sources

Treatment Of Cerebral Palsy And Motor Delay

Author : Sophie Levitt
ISBN : 9781118699782
Genre : Medical
File Size : 68. 46 MB
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Treatment of Cerebral Palsy and Motor Delay is first and foremost a practical book, a distillation of Sophie Levitt’s considerable experience in treating those affected by cerebral palsy. This fifth edition outlines therapeutic approaches and suggests treatment and management options, providing a wealth of practical information, supported by clear diagrams and photographs, on assessment, management and treatment. The book emphasises an eclectic, holistic approach, and integrates current ideas on motor control and motor learning in a further development of Levitt’s Collaborative Learning Approach. This new edition provides greater commentary on evidence-based practice, as well as practical, updated information on the use of botulinum toxin, orthopaedic surgery and the therapist's role following these procedures. The book is aimed primarily at practitioners and students concerned with the developmental abilities and difficulties of children, particularly physiotherapists and occupational therapists working in paediatrics. Doctors and other healthcare professionals will also find useful insights in the book. Parents, families and also teachers of people with cerebral palsy can learn more about therapy by consulting the book together with their therapist. Written by an international authority in the field Extensively revised, updated and well referenced Emphasises an eclectic, functional and holistic approach Highly illustrated Promotes positive relationships between therapists, people with cerebral palsy and their families From the Foreword: "I greatly welcome the fifth edition of this book which brings together the management of cerebral palsies into a comprehensive but readable form… This book is in my view an essential part of both a therapist’s and doctor’s basic understanding of the subject… This book remains essential for those managing children with disability." —Brian Neville, Professor of Childhood Epilepsy, Professor of Paediatric Neurology, University College London, Institute of Child Health/Great Ormond Street Hospital for Children NHS Trust.

Understanding Applied Behavior Analysis Second Edition

Author : Albert J. Kearney
ISBN : 9781784500306
Genre : Psychology
File Size : 65. 54 MB
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This introductory guide to ABA demystifies the often complex terminology, the underlying principles, and commonly-used procedures of ABA using accessible, everyday language. This revised and updated edition reflects recent developments and introduces new key terms. Albert J. Kearney explains the kinds of learning and reinforcement processes that form the basis of ABA programs. Having covered these essential principles, he describes how the science of behavior analysis can be effectively applied to real life behavior problems. He looks at how behavior is assessed and various intervention techniques that are often employed with children who have autism and other special needs. Having laid these essential foundations, Kearney touches on more advanced topics: the applications of ABA in behavioral education, such as precision teaching and programmed instruction.

Teaching Motor Skills To Children With Cerebral Palsy And Similar Movement Disorders

Author : Sieglinde Martin
ISBN : 1890627720
Genre : Education
File Size : 68. 70 MB
Format : PDF
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Written by an experienced physical therapist, this practical guide gives parents the keys they need to help their child with cerebral palsy or another developmental delay master gross motor skills beginning in infancy. Organised in the sequence children acquire gross motor skills, this guide explains how motor development unfolds, and how cerebral palsy can affect this development. There are dozens of illustrated exercises that can help children gradually strengthen back, neck and tummy muscles and then master motor skills, such as head control, sitting, crawling, standing, and walking. While parents can and should practice these exercises at home, the author stresses how success is dependent on parents and therapist working together. Real-life vignettes provide examples of how parents, children, and physical therapists interact, what difficulties can arise and how to try and work through them. The author guides parents step-by-step through techniques and practical exercises that address such issues as: head control; muscle tone; proper positioning; involuntary movements; stretching and flexibility; balance and coordination; strength training. Each chapter includes a section of frequently asked questions by parents, and the final chapter covers important topics such as the medical management of spasticity, serial casting, bracing, neuromuscular electrical stimulation and surface electromyography. Consistent and regular practice of motor exercises is crucial for a child with CP to reach their motor potential; this practical guide makes it easy for parents and other caregivers to reinforce at home the exercises introduced by a childs physical therapist. Target Audience: Parents of children with cerebral palsy, physical therapists (PTs), -- especially pediatric PTs -- Occupational Therapists (OTs), early intervention professionals and teachers.

Trapped

Author : Fran Macilvey
ISBN : 9781629141299
Genre : Biography & Autobiography
File Size : 20. 74 MB
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A revelatory memoir of one woman’s life with disability, depression, acceptance, and ultimately, love. Fran MacIlvey’s life had a difficult path from the moment she came into the world. Her mother, living in the Belgian Congo in the 1960s, had known she was pregnant with a daughter. But she didn’t know she was pregnant with two. By the time the doctors responded, one hour too late, Fran was born with cerebral palsy. Growing up disabled, Fran always felt different. While other children played, she could only watch. She grew up feeling like a frozen spectator, the observer of an unjust world that moved effortlessly around her. Juvenile hurt turned into adult anger, self-hatred, and suicidal depression—until the day when someone saw past her limitations, launching Fran on a journey of introspection, self-acceptance, and love. Exploring Fran’s million and one mistakes and successes on the path to peace and joy, Trapped is a revealing and honest meditation on what it means to live with disabilities—a beacon of hope and a powerful lesson in understanding.

Qigong Massage For Your Child With Autism

Author : Louisa Silva
ISBN : 9781848190702
Genre : Psychology
File Size : 43. 98 MB
Format : PDF
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Qigong massage has been used in China for thousands of years as a means to achieve health and wellbeing, and to treat a wide variety of ailments. This book teaches parents a simple qigong massage programme that has been developed specifically for the needs of children with autism spectrum disorders (ASDs). With step-by-step instructions and an accompanying DVD demonstrating the technique in action, this book offers parents clear guidance on how to adopt qigong massage into their child's daily routine successfully. The program is based around a core 15 minute massage that, when performed regularly, has been shown to greatly improve mood and behavior, sleeping patterns, and language and social skills. Also included is information on diet, advice on reading a child's body language during massage, and helpful progress checklists. Qigong massage is the ideal therapy for parents looking for an alternative way to strengthen the mind, body and sensory abilities of their young child with autism aged 6 and under.

Understanding Pathological Demand Avoidance Syndrome In Children

Author : Margaret Duncan
ISBN : 0857002538
Genre : Education
File Size : 58. 63 MB
Format : PDF
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This straightforward guide offers a complete overview of Pathological Demand Avoidance Syndrome (PDA) and gives practical advice for overcoming the difficulties it poses in a wide range of contexts from diagnosis through to adulthood. Starting with an exploration into the background of PDA that answers many of the immediate questions triggered when a child is first diagnosed, the book goes on to look at the impact of the condition on different areas of the child's life and what can be done to help. The authors present useful information on early intervention options and workable strategies for managing PDA positively on a day-to-day basis. They also examine ways to minimize common difficulties that may be encountered at home and school, making life easier for the child, family and peers. The final chapters tackle new problems that can arise when the teenage years hit and how to assist a successful transition from adolescence to adulthood. Illustrative case examples are included throughout, and the book concludes with a list of valuable resources for further information and advice. Full of helpful guidance and support, this user-friendly introductory handbook is essential reading for anyone caring for, or working with, children with PDA.

The Cerebral Palsy Handbook

Author : Marion Stanton
ISBN : 0091876761
Genre : Medical
File Size : 86. 67 MB
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This compassionate, comprehensive guide offers clear information for parents and guardians learning to care for a child with cerebral palsy. It covers the early stages, day-to-day care, types of treatment available, support networks, school and legal rights and benefits.

Autism And Spirituality

Author : Olga Bogdashina
ISBN : 9780857005915
Genre : Psychology
File Size : 27. 7 MB
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Olga Bogdashina argues persuasively that, contrary to popular belief, spirituality plays a vital role in the lives of many people with autism spectrum disorders (ASD). Drawing on interdisciplinary research from fields as diverse as psychology, philosophy, anthropology, linguistics, neuroscience and religion, as well as first-hand experiences of people on the spectrum, she shows how people with ASD experience their inner worlds and sense of self, and how this shapes the spiritual dimension of their lives and vice versa. She presents a coherent framework for understanding the routes of spiritual development and 'spiritual giftedness' within this group, offering insights that will inform understanding of how to support and nurture spiritual wellbeing in people with ASDs. This book gives a voice to both verbal and non-verbal individuals on the autism spectrum whose spiritual experiences, though often unconventional, are meaningful and profound. It is essential reading for all those interested in the spiritual wellbeing of this group, including pastoral carers and counsellors, ministers of religion, spiritual leaders, parents and carers and individuals on the autism spectrum.

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