the best care possible a physician s quest to transform care through the end of life

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The Best Care Possible

Author : Ira Byock
ISBN : 9781583335123
Genre : Medical
File Size : 44. 24 MB
Format : PDF
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Dr. Byock, one of the foremost palliative care physicians in the country, argues that the way we die represents a national crisis. Though the vast majority of Americans would prefer to die peacefully, at home, many will spend their last days in a disease treatment system ruled by high-tech procedures and a philosophy to 'fight disease and illness at all costs.' Dr. Byock, puts a human face on the issue by telling richly moving stories - at once heartwrenching and uplifting - of people coping with the most difficult moments in their lives. As the pace of health care reform accelerates, he shows what truly excellent care can look like, and how wise and skilful doctors, nurses, and clinical teams can profoundly shape families' experiences of illness, caregiving, and loss. Told through page-turning life-or-death medical drama, The Best Care Possibleis a compelling and passionate meditation on medicine and ethics. It has the power to lead a new national conversation. 'Dr. Byock's mission is to help everyone . . . find meaning, dignity, and peace in these final months of life.' Prevention magazine'In this strikingly important book, Byock presents an agenda for end-of-life care that should serve as an ideal template on which to build out best hopes for the final days of those we love and of ourselves - and a corrective for our society.' Sherwin B. Nuland, MD, Yale Interdisciplinary Center for Bioethics; author of How We Die

End Of Life

Author : Lynn Keegan, PhD, RN, AHN-BC, FAAN
ISBN : 0826107605
Genre : Medical
File Size : 30. 39 MB
Format : PDF, Mobi
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2011 AJN Book of the Year Winner in both Gerontologic Nursing and Hospice and Palliative Care! "The book is easy to read and is essential to all who work and care for those at the end of life." --David Shields, RN, MSN, QTTT Assistant Professor of Nursing Capital University "The book is thought provoking and, if you are like me, you will be assessing (consciously or subconsciously) how good you or your service are at providing holistic care around the time of death. It deserves to be widely read and I hope it starts many a conversation." IAHPC Newsletter "[This book] is a gem. It is a rare balance of an interesting read with an incredible integration of factual information. I intend to share it in my long term care circles...A wonderful contribution!" Charlotte Eliopoulos,RN, MPH, PhD Executive Director American Association for Long Term Care Nursing "Every once in a long while a short, succinct book comes along that awakens our senses and motivates us to action. [This] is one such book. It cuts right to the chase to offer a new, innovative change for an old, outmoded rite of passage." Barbara Dossey, PhD, RN, AHN-BC, FAAN Co-Director, Nightingale Initiative for Global Health, Canada and Virginia Director, Holistic Nursing Consultants, New Mexico (From the Foreword) This professional clinical guide presents nursing administrators and nurses in acute care agencies, nursing homes, hospice, and palliative care settings with detailed implementation strategies for accommodating dying persons and their loved ones as they make the transition from physical life. It presents the need for and the development of the concept: Golden Room concept: a place for dying that facilitates a dignified, peaceful, and profound experience for dying persons and their loved ones. This book presents a practical solution on multiple levels that will benefit all involved-patient, family, nurses, administrators, policy makers, and insurance companies. It presents the theoretical frameworks for end-of-life care and how the Golden Room concept fits into these frameworks. Published in partnership with the Watson Caring Science Institute, this unique resource: Advocates the use of Golden Rooms, which provide dignified, private, and safe settings for death and dying Presents various cases that illustrate the need for a dignified death, as well as strategies on how to provide for this dignified death Provides questions of concern after each case scenario, suitable for class discussion or personal reflection Offers cost-effective end-of-life solutions for families, the medical establishment, and insurance companies

Sick To Death And Not Going To Take It Anymore

Author : Joanne Lynn
ISBN : 0520931424
Genre : Medical
File Size : 37. 6 MB
Format : PDF, Kindle
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Just a few generations ago, serious illness, like hazardous weather, arrived with little warning, and people either lived through it or died. In this important, convincing, and long-overdue call for health care reform, Joanne Lynn demonstrates that our current health system, like our concepts of health and disease, developed at a time when life was mostly short, serious illnesses and disabilities were common at every age, and dying was quick. Today, most Americans live a long life, with the disabilities and discomforts of progressive chronic illness appearing only during the final chapters of their life stories. Sick to Death and Not Going to Take It Anymore! maintains that health care and community services are not set up to meet the needs of the large number of people who face a prolonged period of progressive illness and disability before death. Lynn offers what she calls an "owner's manual for the health care system," which lays out facts, concepts, strategies, and action plans for genuine reform and gives the reader new ways to interpret information creatively, imagine innovative possibilities, and take steps to implement them.

Dying Well

Author : Ira Byock
ISBN : 1573226572
Genre : Family & Relationships
File Size : 86. 28 MB
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Explores the important emotional work accomplished in the final months of life and offers advice on dealing with doctors, talking with friends and relatives, and mananging end-of-life care

The Four Things That Matter Most 10th Anniversary Edition

Author : Ira Byock
ISBN : 0743258606
Genre : Self-Help
File Size : 82. 54 MB
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Newly updated with stories from people who have turned to this life-altering book in their time of need, this motivational teaching about what really matters reminds us how we can honor each relationship every day. Four simple phrases—“Please forgive me,” “I forgive you,” “Thank you,” and “I love you”—carry enormous power to mend and nurture our relationships and inner lives. These four phrases and the sentiments they convey provide a path to emotional wellbeing, guiding us through interpersonal difficulties to life with integrity and grace. Dr. Ira Byock, an international leader in palliative care, explains how we can practice these life-affirming words in our day-to-day lives. Too often we assume that the people we love really know that we love them. Dr. Byock demonstrates the value of “stating the obvious” and provides practical insights into the benefits of letting go of old grudges and toxic emotions. His stories help us to forgive, appreciate, love, and celebrate one another and live life more fully. Using the Four Things in a wide range of life situations, we can experience emotional healing even in the wake of family strife, personal tragedy, divorce, or in the face of death. With practical wisdom and spiritual power, The Four Things That Matter Most gives us the language and guidance to honor and experience what really matters most in our lives every day.

The Oxford Handbook Of Ethics At The End Of Life

Author : Stuart J. Youngner
ISBN : 9780199976263
Genre : Medical
File Size : 41. 60 MB
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This handbook explores the topic of death and dying from the late twentieth to the early twenty-first centuries, with particular emphasis on the United States. In this period, technology has radically changed medical practices and the way we die as structures of power have been reshaped by the rights claims of African Americans, women, gays, students, and, most relevant here, patients. Respecting patients' values has been recognized as the essential moral component of clinical decision-making. Technology's promise has been seen to have a dark side: it prolongs the dying process. For the first time in history, human beings have the ability control the timing of death. With this ability comes a responsibility that is awesome and inescapable. How we understand and manage this responsibility is the theme of this volume. The book comprises six sections. Section I examines how the law has helped shape clinical practice, emphasizing the roles of rights and patient autonomy. Section II focuses on specific clinical issues, including death and dying in children, continuous sedation as a way to relieve suffering at the end of life, and the problem of prognostication in patients who are thought to be dying. Section III considers psychosocial and cultural issues. Section IV discusses death and dying among various vulnerable populations such as the elderly and persons with disabilities. Section V deals with physician-assisted suicide and active euthanasia (lethal injection). Finally, Section VI looks at hospice and palliative care as a way to address the psychosocial and ethical problems of death and dying.

Palliative Care

Author : Harold Y. Vanderpool
ISBN : 9780786497997
Genre : Health & Fitness
File Size : 78. 82 MB
Format : PDF
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“This wise and revealing study is sure to be valuable to the dying and those who love them, as well as to the physicians and other health professionals who care for them.”--Library Journal The long history of medical care for the dying has largely been neglected. It began in 1605 when physicians were challenged to enable persons to die peacefully. Today it includes palliation of oppressive symptoms, emotional and psychological care, and respect for the wishes and cultural backgrounds of patients and families. Especially since the 1990s, it embraces symptom-easing palliation for patients with severe life-limiting and chronic illnesses. Providing a detailed picture of contemporary palliative care, this book chronicles four centuries of the quest for a good death, covering the fight against futile end-of-life treatments, the history of life-extending treatments and technologies, the roles of nurses, the liberation of the dying from isolation in hospitals and hard-won victories to secure patients' right to choose.

Meeting The Needs Of Older Adults With Serious Illness

Author : Amy S. Kelley
ISBN : 9781493904075
Genre : Medical
File Size : 21. 98 MB
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Meeting the Needs of Older Adults with Serious Illness: Challenges and Opportunities in the Age of Health Care Reform provides an introduction to the principles of palliative care; describes current models of delivering palliative care across care settings, and examines opportunities in the setting of healthcare policy reform for palliative care to improve outcomes for patients, families and healthcare institutions. The United States is currently facing a crisis in health care marked by unsustainable spending and quality that is poor relative to international benchmarks. Yet this is also a critical time of opportunity. Because of its focus on quality of care, the Affordable Care Act is poised to expand access to palliative care services for the sickest, most vulnerable, and therefore most costly, 5% of patients- a small group who nonetheless drive about 50% of all healthcare spending. Palliative care is specialized medical care for people with serious illnesses. It focuses on providing patients with relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis or stage of illness. The goal is to improve quality of life for both the patient and the family. Research has demonstrated palliative care’s positive impact on health care value. Patients (and family caregivers) receiving palliative care experience improved quality of life, better symptom management, lower rates of depression and anxiety, and improved survival. Because patient and family needs are met, crises are prevented, thereby directly reducing need for emergency department and hospital use and their associated costs. An epiphenomenon of better quality of care, the lower costs associated with palliative care have been observed in multiple studies. Meeting the Needs of Older Adults with Serious Illness: Challenges and Opportunities in the Age of Health Care Reform, a roadmap for effective policy and program design, brings together expert clinicians, researchers and policy leaders, who tackle key areas where real-world policy options to improve access to quality palliative care could have a substantial role in improving value.

Tracking Medicine

Author : John E. Wennberg
ISBN : 0199830851
Genre : Medical
File Size : 28. 2 MB
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Written by a groundbreaking figure of modern medical study, Tracking Medicine is an eye-opening introduction to the science of health care delivery, as well as a powerful argument for its relevance in shaping the future of our country. An indispensable resource for those involved in public health and health policy, this book uses Dr. Wennberg's pioneering research to provide a framework for understanding the health care crisis; and outlines a roadmap for real change in the future. It is also a useful tool for anyone interested in understanding and forming their own opinion on the current debate.

Spiritual Care At The End Of Life

Author : Steve Nolan
ISBN : 0857005138
Genre : Body, Mind & Spirit
File Size : 46. 76 MB
Format : PDF, ePub, Mobi
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Chaplains in healthcare settings offer patients spiritual care that involves companionship, counselling and maintaining hope. This is particularly important at the point where a patient has run out of treatment possibilities. This book reflects creatively on the work that chaplains do with people who are dying and the unique quality of the relationship that palliative care professionals construct with patients at the end of life. Based on qualitative research with practising palliative care chaplains, Spiritual Care at the End of Life explores the nature of hope in its different forms at different stages of terminal illness, and asks how chaplains can help dying people to be hopeful even when facing the inevitability of their death. The book identifies key moments in this relationship, from the person's initial reaction to the chaplain, to the chaplain becoming an accompanying presence and creating the potential to provide comfort, strength and "hope in the present". This thoughtful and inquisitive book investigates the underlying theory that spiritual care is rooted in relationship. It has implications for practice in the work of chaplains, counsellors and all healthcare professionals supporting people who are dying.

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