impairment and disability law and ethics at the beginning and end of life biomedical law and ethics library

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Impairment And Disability

Author : Sheila McLean
ISBN : 9781135428068
Genre : Law
File Size : 27. 93 MB
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This book explores legislation intended to protect the interests of people with disabilities or impairments. Considering a broad range of ethical and legal concerns which arise in issues of life, death and disability, it covers the social and legal responses to the equality rights of disabled people, focusing on those responses to: the right to life the end of life assisted suicide. This work engages with contemporary debates, examines case studies and explores the problems surrounding many legal concepts within the context of disability and impairment. The authors argue that it is crucial to distinguish between unjust discrimination and differential treatment and unify the disagreements surrounding the issues by highlighting ethical ideals that should be shared by all stakeholders in life and death decisions that impact on people with disabilities. Topical and contemporary, this book is a perfect supplementary text for students of all levels and researchers working in the areas of law, applied ethics and disability theory.

Critically Impaired Infants And End Of Life Decision Making

Author : Neera Bhatia
ISBN : 9781317573562
Genre : Law
File Size : 86. 87 MB
Format : PDF
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Decisions to withdraw or withhold life-sustaining treatment are contentious, and offer difficult moral dilemmas to both medical practitioners and the judiciary. This issue is exacerbated when the patient is unable to exercise autonomy and is entirely dependent on the will of others. This book focuses on the legal and ethical complexities surrounding end of life decisions for critically impaired and extremely premature infants. Neera Bhatia explores decisions to withdraw or withhold life-sustaining treatment from critically impaired infants and addresses the controversial question, which lives are too expensive to treat? Bringing to bear such key issues as clinical guidance, public awareness, and resource allocation, the book provides a rational approach to end of life decision making, where decisions to withdraw or withhold treatment may trump other competing interests. The book will be of great interest and use to scholars and students of bioethics, medical law, and medical practitioners.

The Voices And Rooms Of European Bioethics

Author : Richard Huxtable
ISBN : 9781317804574
Genre : Law
File Size : 83. 23 MB
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This book reflects on the many contributions made in and to European bioethics to date, in various locations, and from various disciplinary perspectives. In so doing, the book advances understanding of the academic and social status of European bioethics as it is being supported and practiced by various disciplines such as philosophy, law, medicine, and the social sciences, applied to a wide range of areas. The European focus offers a valuable counter-balance to an often prominent US understanding of bioethics. The volume is split into four parts. The first contains reflection on bioethics in the past, present and future, and also considers how comparison between countries and disciplines can enrich bioethical discourse. The second looks at bioethics in particular locations and contexts, including: policy, boardrooms and courtrooms; studios and virtual rooms; and society, while the third part explores the translation of theories and concepts of bioethics into the clinical setting. The fourth and final section focuses on academic expressions of bioethics, as it is theorised in various disciplines and also as it is taught, whether in classrooms or at the patient’s bedside. The book features unique contributions from a range of experts including: Alastair V Campbell; Ruth Chadwick; Angus Dawson; Raymond G. De Vries; Suzanne Ost; Renzo Pegoraro; Rouven Porz; Paul Schotsmans; Jochen Vollmann; Guy Widdershoven and Hub Zwart. Chapter 10 of this book ''You Don't Need Proof When You've Got Instinct!': Gut Feelings and Some Limits to Parental Authority' by Giles Birchley is available under an open access CC BY NC ND license and can be viewed at: http://www.tandfebooks.com/userimages/ContentEditor/1438250845242/9780415737197_chapter10.pdf .

Saviour Siblings

Author : Michelle Taylor-Sands
ISBN : 9781136012167
Genre : Medical
File Size : 81. 98 MB
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Genetic screening technologies involving pre-implantation genetic diagnosis (PGD) raise particular issues about selective reproduction and the welfare of the child to be born. How does selection impact on the identity of the child who is born? Are children who are selected for a particular purpose harmed or treated as commodities? How far should the state interfere with parents’ reproductive choices? Currently, concerns about the welfare of the child in selective reproduction have focused on the individual interests of the child to be born. This book re-evaluates the welfare of the child through the controversial topic of saviour sibling selection. Drawing on relational feminist and communitarian ethics, Michelle Taylor-Sands argues that the welfare of the child to be born is inextricably linked with the welfare of his/her family. The author proposes a relational model for selective reproduction based on a broad conception of the welfare of the child that includes both individual and collective family interests. By comparing regulation in the UK and Australia, the book maps out how law and policy might support a relational model for saviour sibling selection. With an interdisciplinary focus, Saviour Siblings: A Relational Approach to the Welfare of the Child in Selective Reproduction will be of particular interest to academics and students of bioethics and law as well as practitioners and policymakers concerned with the ethics of selective reproduction.

The Harm Paradox

Author : Nicolette Priaulx
ISBN : 1844721086
Genre : Law
File Size : 59. 2 MB
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Offering the first comprehensive theoretical engagement with actions for wrongful conception and birth, The Harm Paradoxprovides readers with an insightful critique into the concepts of choice, responsibility and personhood. Raising fundamental questions relating to birth, abortion, family planning and disability, Priaulx challenges the law'Č"s response that enforced parenthood is a harmless outcome and examines the concept of autonomy, gender and women'Č"s reproductive freedom. It explores a wealth of questions, including: Can a healthy child resulting from negligence in family planning procedures constitute 'Č▄harm'Č" sounding in damages, when so many see its birth as a blessing? Can a pregnancy constitute an 'Č▄injury'Č" when many women choose that very event? Are parents really harmed, when they choose to keep their much loved but 'Č▄unwanted child'Č"? Why don'Č"t women seek an abortion if the consequences of pregnancy are seen as harmful? An exciting and original contribution to the fields of medical law and ethics, tort law and feminist jurisprudence, this is an excellent resource for both students and practitioners.

Human Fertilisation And Embryology

Author : Kirsty Horsey
ISBN : 184472090X
Genre : Law
File Size : 26. 14 MB
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Relevant to students, academics and practitioners across the globe, this original volume highlights contemporary issues associated with assisted reproduction and embryology and critically analyzes the law surrounding human reproduction in the light of case law and technological developments since the Human Fertilisation and Embryology Act (HFE Act) Act was passed in 1990. Tackling issues from an interdisciplinary perspective, the authors identify and evaluate areas that have provoked intense public and academic debate as well as those where further or renewed regulation is needed. Focusing primarily on the legal and ethical issues involved in regulating this area in the UK, which is at the forefront of developing legislation in this area, this book has international relevance as many countries have used the UK as a model for their own legislation. This text is suitable for a broad range of readers, including legal academics, law students and practitioners interested in the areas of medical/healthcare law and ethics, bioethics and moral philosophy, family law, sociology and reproductive medicine and genetics.

Dying In America

Author : Institute of Medicine
ISBN : 9780309303132
Genre : Medical
File Size : 36. 68 MB
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For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Coercive Care

Author : Bernadette Mcsherry
ISBN : 9781135016586
Genre : Law
File Size : 25. 95 MB
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There has been much debate about mental health law reform and mental capacity legislation in recent years with the UN Convention on the Rights of Persons with Disabilities also having a major impact on thinking about the issue. This edited volume explores the concept of ‘coercive care’ in relation to individuals such as those with severe mental illnesses, those with intellectual and cognitive disabilities and those with substance use problems. With a focus on choice and capacity the book explores the impact of and challenges posed by the provision of care in an involuntary environment. The contributors to the book look at mental health, capacity and vulnerable adult’s care as well as the law related to those areas. The book is split into four parts which cover: human rights and coercive care; legal capacity and coercive care; the legal coordination of coercive care and coercive care and individuals with cognitive impairments. The book covers new ground by exploring issues arising from the coercion of persons with various disabilities and vulnerabilities, helping to illustrate how the capacity to provide consent to treatment and care is impaired by reason of their condition.

The Contingent Nature Of Life

Author : Marcus Düwell
ISBN : 140206764X
Genre : Science
File Size : 67. 52 MB
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This volume explores the different dimensions of how the contingency of life, and especially human life, is relevant for ethical discussions and the normative frameworks in bioethics. It explores the relevance of the notion contingency, needs and desires for moral argumentation and bioethics. The volume discusses those notions in a philosophical perspective. Additionally, the volume is a contribution to a deeper reflection on basic philosophical assumptions of bioethics.

Cancer Care For The Whole Patient

Author : Institute of Medicine
ISBN : 9780309134163
Genre : Medical
File Size : 90. 23 MB
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Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychological and social (psychosocial) problems associated with the illness. This failure can compromise the effectiveness of health care and thereby adversely affect the health of cancer patients. Psychological and social problems created or exacerbated by cancer--including depression and other emotional problems; lack of information or skills needed to manage the illness; lack of transportation or other resources; and disruptions in work, school, and family life--cause additional suffering, weaken adherence to prescribed treatments, and threaten patients' return to health. Today, it is not possible to deliver high-quality cancer care without using existing approaches, tools, and resources to address patients' psychosocial health needs. All patients with cancer and their families should expect and receive cancer care that ensures the provision of appropriate psychosocial health services. Cancer Care for the Whole Patient recommends actions that oncology providers, health policy makers, educators, health insurers, health planners, researchers and research sponsors, and consumer advocates should undertake to ensure that this standard is met.

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