genetic testing accounts of autonomy responsibility and blame genetics and society

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Genetic Testing

Author : Michael Arribas-Ayllon
ISBN : 9781134026296
Genre : Law
File Size : 69. 17 MB
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Advances in molecular genetics have led to the increasing availability of genetic testing for a variety of inherited disorders. While this new knowledge presents many obvious health benefits to prospective individuals and their families it also raises complex ethical and moral dilemmas for families as well as genetic professionals. This book explores the ways in which genetic testing generates not only probabilities of potential futures, but also enjoys new forms of social, individual and professional responsibility. Concerns about confidentiality and informed consent involving children, the assessment of competence and maturity, the ability to engage in shared decision-making through acts of disclosure and choice, are just some of the issues that are examined in detail.

The Handbook Of Genetics Society

Author : Paul Atkinson
ISBN : 9781134128778
Genre : Science
File Size : 86. 99 MB
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An authoritative Handbook which offers a discussion of the social, political, ethical and economic consequences and implications of the new bio-sciences. The Handbook takes an interdisciplinary approach providing a synoptic overview of contemporary international social science research on genetics, genomics and the new life sciences. It brings together leading scholars with expertise across a wide-ranging spectrum of research fields related to the production, use, commercialisation and regulation of genetics knowledge. The Handbook is structured into seven cross-cutting themes in contemporary social science research on genetics with introductions written by internationally renowned section editors who take an interdisciplinary approach to offer fresh insights on recent developments and issues in often controversial fields of study. The Handbook explores local and global issues and critically approaches a wide range of public and policy questions, providing an invaluable reference source to a wide variety of researchers, academics and policy makers.


Author : Anna Harris
ISBN : 9781317368182
Genre : Social Science
File Size : 37. 27 MB
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Online genetic testing services are increasingly being offered to consumers who are becoming exposed to, and knowledgeable about, new kinds of genetic technologies, as the launch of a 23andme genetic testing product in the UK testifies. Genetic research breakthroughs, cheek swabbing forensic pathologists and celebrities discovering their ancestral roots are littered throughout the North American, European and Australasian media landscapes. Genetic testing is now capturing the attention, and imagination, of hundreds of thousands of people who can not only buy genetic tests online, but can also go online to find relatives, share their results with strangers, sign up for personal DNA-based musical scores, and take part in research. This book critically examines this market of direct-to-consumer (DTC) genetic testing from a social science perspective, asking, what happens when genetics goes online? With a focus on genetic testing for disease, the book is about the new social arrangements which emerge when a traditionally clinical practice (genetic testing) is taken into new spaces (the internet). It examines the intersections of new genetics and new media by drawing from three different fields: internet studies; the sociology of health; and science and technology studies. While there has been a surge of research activity concerning DTC genetic testing, particularly in sociology, ethics and law, this is the first scholarly monograph on the topic, and the first book which brings together the social study of genetics and the social study of digital technologies. This book thus not only offers a new overview of this field, but also offers a unique contribution by attending to the digital, and by drawing upon empirical examples from our own research of DTC genetic testing websites (using online methods) and in-depth interviews in the United Kingdom with people using healthcare services.

Community Genetics And Genetic Alliances

Author : Associate Professor of Sociology Aviad E Raz
ISBN : 9781134005437
Genre : Medical
File Size : 73. 28 MB
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Carrier testing of adults provides information about the risk of passing a genetic mutation to your children, leading to reproductive (and some say, eugenic) decisions. Excessive carrier screening may have adverse effects, but it can also prevent suffering and open up new reproductive options. Raz's study focuses on the interplay of community genetics (the medical organisation of carrier screening) and genetic alliances (networks of individuals at risk), exploring how 'genetic communities' are emerging both within existing ethnic groups and around patients' organizations. While the interplay between carrier testing, reproduction and eugenics has sparked many discussions, this study provides a novel and much-needed perspective on its actual implementation and interpretation by community members. Conflating a cross-cultural spectrum of genetic communities, the benefits and perils of supporting (or restricting) carrier screening are located within broader social issues such as religion, ethnicity, multi-culturalism, abortion, stigmatization, suffering and care-giving. While carrier screening emerges as ultimately a morally justified pronatalist endeavour for the reduction of suffering, thus being different in principle from the 'old' eugenics, it can also carry unintended adverse consequences if left unattended to consumers, communities, or health professionals.

Gm Food On Trial

Author : Les Levidow
ISBN : 9781135237813
Genre : Business & Economics
File Size : 88. 51 MB
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Europe was told that it had no choice but to accept agbiotech, yet this imperative was turned into a test of democratic accountability for societal choices. Since the late 1990s, European public controversy has kept the agri-biotech industry and its promoters on the defensive. As some opponents and regulators alike have declared, ‘GM food/crops are on trial’. Suspicion of their guilt has been evoked by moral symbols, as disputes over whether genetically-modified products are modest benign improvements on traditional plant breeding, or dangerous Frankenfoods; and in disputes over whether they are global saviours, or control agents of multinational companies. This book examines European institutions being ‘put on trial’ for how their regulatory procedures evaluate and regulate GM products, in ways which opened up alternative futures. Levidow and Carr highlight how public controversy created a legitimacy crisis, leading to national policy changes and demands, in turn stimulating changes in EU agbiotech regulations as a strategy to regain legitimacy.

Autonomie Und Erziehung

Author : Karin Nordström
ISBN : 9783495860366
Genre : Philosophy
File Size : 67. 66 MB
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Was ist legitime Erziehung? Was heißt es, wenn zu Selbstbestimmung erzogen werden soll, und wie ist Autonomie als Zielvorstellung zu bestimmen und zu begründen? Diesen Fragen wird aus einer ethischen Perspektive nachgegangen. Dabei werden die Begriffe Erziehung und Autonomie von ihrer Normativität her betrachtet. Es geht ausgehend von einer allgemeinen Diskussion um moralpädagogische Zielvorstellungen um die Frage, wie Erziehung mit der Zielvorstellung Autonomie als Autonomie begrenzende Situationen zu verstehen ist. Die Autorin argumentiert für eine Sichtweise von Autonomie, welche diese nicht als Gegenüber zu Dependenz, sondern innerhalb von Dependenz bestimmt. Als pädagogische Zielvorstellung wird Autonomie so zu einem kompetenten Umgang mit Dependenz. Aspekte von Dependenz, welche als relevant hervorgehoben werden, sind Interaktion, Relationalität und Zeit. Ausgehend von einem kohärenzorientierten Begründungsmuster wird dafür argumentiert, dass die Zielvorstellung Autonomie eine Sichtweise bedingt, welche Erziehung zu Autonomie als Erziehung in Autonomie fasst. Die Zielvorstellung Autonomie ist demgemäß normierend für Erziehung insofern, als sie sich als bedingend für den in der Erziehungssituation artikulierten Anspruch erweist. Die theoretischen Ausführungen werden anhand aktueller Fragen im Bereich der Pädagogik diskutiert. So wird die Verwendung von Schwänz-sms, die Kopftuchfrage sowie die Bedeutung von Überwachungskameras in Schulen diskutiert.

Pl Doyer Gegen Die Perfektion

Author : Michael Sandel
ISBN : 373741307X
Genre :
File Size : 37. 16 MB
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Author : Raymond Battegay
ISBN : 9783105606377
Genre : Psychology
File Size : 69. 18 MB
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Menschen mit seelischen und anderen Problemen befinden sich häufig in Grenzsituationen, die ihr Leben bedrohen. Solche Grenzsituationen können Depressionen, Süchte, neurotische und psychotische Erkrankungen, aber auch kollektiv erklärbare Verhaltensweisen sein. Raymond Battegay stellt solche möglichen Grenzsituationen dar und zeigt therapeutische Wege aus der Bedrohung. (Dieser Text bezieht sich auf eine frühere Ausgabe.)

Eine Naturgeschichte Der Menschlichen Moral

Author : Michael Tomasello
ISBN : 9783518748220
Genre : Psychology
File Size : 58. 73 MB
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Die Evolution des menschlichen Moralbewusstseins gehört zu den großen Rätseln der Wissenschaft. Es hat die Phantasie von Generationen von Forschern beflügelt, zahlreiche Theorien liegen auf dem Tisch, aber die Frage »Woher kommt die Moral?« ist nach wie vor offen. In Fortschreibung seiner faszinierenden Naturgeschichte des Menschen legt nun Michael Tomasello eine Antwort vor. Gestützt auf jahrzehntelange empirische Forschungen, rekonstruiert er die Entstehung des einzigartigen menschlichen Sinns für Werte und Normen als einen zweistufigen Prozess. Dieser beginnt vor einigen hunderttausend Jahren, als die frühen Menschen gemeinsame Sache machen mussten, um zu überleben; und er endet beim modernen, ultrakooperativen homo sapiens sapiens, der beides besitzt: Eine Moralität der zweiten Person, die unseren Umgang mit dem je einzelnen Gegenüber prägt, und eine gruppenbezogene »objektive« Moral, die sagt, was hier bei »uns« als gut oder gerecht gilt. In der Tradition von Mead, Kohlberg und Piaget zeigt Tomasello außerdem, wie sich die individuelle Moralentwicklung in einer bereits normengesättigten Welt vollzieht. Und so ist Eine Naturgeschichte der menschlichen Moral der derzeit wohl umfassendste Versuch zu verstehen, wie wir das geworden sind, was nur wir sind: genuin moralische Wesen.

Die Gene

Author : Siddhartha Mukherjee
ISBN : 3100022718
Genre :
File Size : 53. 5 MB
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